Resources

Listed here are a number of resources that we have found to be very useful over the years. We hope that they will be of help to you.

Developmental Disabilities

The California State Council on Developmental Disabilities ensures that people with developmental disabilities and their families receive the services they need.

North Los Angeles County Regional Center site describes services and events for people with developmental disabilities in the San Fernando, Santa Clarita and Antelope Valleys.

Department of Developmental Services provides information on the Frank D. Lanterman act and explains the appeals, complaints and comments process. They may also be reached at 916-654-1987.

Therapeutic Living Centers for the Blind highlights their specialized residential and day care services for people with blind and multiple handicaps.

The Tierra del Sol Foundation profiles their day and vocational training programs.

The American Association on Mental Retardation (AAMR) offers resources at www.aamr.org including publications, periodicals and abstracts from around the web.

The Association for Retarded Citizens (The ARC) maintains great resources about mental retardation at www.thearc.org including numerous fact sheets, position statements, and information regarding governmental affairs.

The National Information Center for Children and Youth with Disabilities is a national information and referral center that provides information on disabilities and disability-related issues for families, educators and other professionals.

The Administration on Developmental Disabilities (ADD) serves as the key federal agency in the United States responsible for ensuring the implementation of the Developmental Disabilities Assistance and Bill of Rights Act and its regulations.

The National Association of Developmental Disabilities Councils promotes national policy that enables individuals with developmental disabilities the opportunity to make choices regarding the quality of their lives and be included in the community.

The Developmental Disability Resource Center, refers to itself as the unofficial guide to state developmental disability agency sites.

The UC Davis M.I.N.D. Institute maintains a site addressing the medical investigation of neurodevelopmental disorders including autism, cerebral palsy, Tourette syndrome.

Special Needs Resource is a collaborative resource directory for the special needs community.

New Horizons profiles their special programs, including work-training.

Life Steps Foundation transforms the lives of people living with disabilities through in-home and center-based services.

Special Education sites and resources from people studying to receive their PhD in Special Education.

Information About Specific Disabilities

Autism

The Autism Research Institute at offers very current information about autism and potential treatments and therapies.

The Autism Network International is a self-help and advocacy organization for people with autism. This site is exceptionally insightful as ANI is run both by and for people with autism.

Therapeutic Communication Through Music emphasizes that music therapy can help patients suffering from autism spectrum and other disorders.

Autism Speaks is dedicated to research, awareness, and advocacy.

Cerebral Palsy

The United Cerebral Palsy site includes information regarding innovative projects, advocacy and research pertaining to cerebral palsy.

Down Syndrome

The National Down Syndrome Society offers comprehensive information about Down syndrome.

The National Down Syndrome Congress offers general information on Down syndrome and a “New Parent Packet.

Fragile X Syndrome

The FRAXA Research Foundation site provides some good, basic information about Fragile X Syndrome.

The National Fragile X Foundation site provides very comprehensive information about Fragile X Syndrome.

Prader-Willi Syndrome

The Prader-Willi California Foundation offers a site with information as to the diagnosis criteria, treatment and progression of PWS.

The Prader-Willi Syndrome Association (USA) is a similar site with a national focus.

Spina Bifida / Hydrocephalus

The Hydrocephalus Association of San Francisco has an exceptional web site that includes a comprehensive list of resources.

Mental Health

The National Association for People with Dual Diagnosis offers some good basic information as well as a comprehensive catalog of publications and videotapes available for purchase.

Aging

The University of Illinois at Chicago College of Applied Health Sciences addresses the many issues complicating the aging process of people with developmental disabilities.

The Alzheimer’s Disease Education and Referral Center is an excellent site on Alzheimer’s disease in general.

Specifically for Parents

The National Parent Network on Disabilities is especially useful for parents with school-age children.

Parents helping Parents is another site particularly valuable to parents with young children with disabilities.